VOLUNTEERS: Welcome to our volunteers who are the backbone of Carion Fenn Syringomyelia Foundation. We are grateful for everyone’s hard work and dedication in helping to make a difference for those dealing with Syringomyelia. We thank everyone for their hard work, dedication, strength, and bravery in support of SM.
Carion Fenn Syringomyelia Foundation was founded by Carion Fenn and is operated by friends, and those living with Syringomyelia (SM).
Carion Fenn (SM)
Founding Chair
Toronto, ON Canada
BOARD OF DIRECTOR Alberta Representative Kathleen Scrivano is a special Education teacher in Edmonton, Alberta, who is currently living with Chiari 1 Malformation, Syringomyelia, and Fibromyaglia. She believes she aquired Chirari 1 Malformation and Syringomyelia from a car accident in 2001. She is very excited to be a part of this website and hopes to help others who first learn of this condition. She knows the lack of knowledge there is out there about this condition, which include medical staff. ____________________________________________ Counselling: Life can be hard. People seek counselling for various reasons. Often, they are feeling bothered by something for too long or their issues seem too overwhelming and complex to work through on their own. Counselling gives clients an opportunity to talk openly about their concerns in a confidential manner with a trained professional.
info@syringomyelia.ca
www.syringomyelia.ca
Carion Fenn is an Interior Decorator/ Designer who is currently living with Syringomyelia. In 2007 Carion was diagnosed with Syringomyelia which was acquired from a car accident in 2006 among other injuries. With the experience of her journey, inspiration of others, support of friends, and the urge of not wanting anyone to go through her experience this foundation was developed. Carion is the owner of Carion Fenn Interiors, ontariodeceorators.com, and Founder & Chair of Carion Fenn Syringomyelia Foundation. Carion is a past Program Director of The Canadian Decorators’ Association as well as chair for the Show Committee. She also worked with other organizations such as the Walls Windows Furnishings Association. Carion was getting ready to launch her own furniture line and follow up with her own TV show when she was involved in the car accident which she acquired Syringomyelia among other injuries.
Carion has earned considerable recognition with media appearances on CITY TV, CHTV, TV ONE, VISION TV, ROGERS 10, CFRB1010, and Flow 93.5 FM. Ms. Fenn has also appeared as a feature designer in the following print media: StyleAtHome.com, Sympatico/MSN, Dream Home & Condominium, and Loulou Magazine. Carion has quickly established her reputation as a passionate leader, design writer, media personality, and official designer for The International Home Show and The International Home & Garden Show.
www.carionfenn.com
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Dale Tidd
Vice Chair/ Marketing/ Fundraiser
Toronto, ON Canada
BOARD OF DIRECTOR
info@syringomyelia.ca
www.syringomyelia.ca
Mr. Tidd is a successful entrepreneur and marketing consultant who provides creative marketing and business development solutions for a number of growing organizations across Canada. Mr. Tidd has produced many successful businesses such as North America’s first Condo trade show. Mr. Tidd has also produced three successful real estate television shows in Toronto and across Canada. Previously, he was a successful security marketing consulting for Microsoft, Apple, IBM and have consulted for over 500 organizations across in the US and Canada.
www.nexientlearning.com
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Kathleen Scrivano (SM)
Alberta Representative
info@syringomyelia.ca
www.syringomyelia.ca
David Burnes, B.Sc,
MSW (clinical), RSW
Counselling & Life Coaching
BOARD OF DIRECTOR
Social Network - Counsellor
www.syringomyelia.ca
www.easycounselling.com
His credentials include: Lecturer at Humber College Institute on Developmental Psychology, Social Policy, and the Canadian Social Service System, Toronto ON. EasyCounselling, Toronto ON. Counselling and Healing Services, Toronto ON. Child, Youth and Family Services, New Zealand. MSW Internship: York University Counselling and Development Centre, Toronto ON. Peer Counsellor, Student to Student Support Services, University of Guelph, Guelph ON.
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Andrea Mills
Administrative Executive
Toronto, ON Canada
BOARD OF DIRECTOR
info@syringomyelia.ca
www.syringomyelia.ca
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Rodolie Maranion
IT Professional
Chicago, IL USA
Volunteer
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Charlie Milne (SM)
Nova Scotia Representative
Halifax, NS Canada
Syringomyelia Awareness Social Network
Canadian Group
Our thanks to Charlie for her beautiful photo's.
Photo's by Charlie Milne
NANCY (SM) & ALEXANDRIA
Volunteers
London & Toronto, ON
Canada
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Christine Webb (SM)
Volunteer
USA Representative
Syringomyelia Awareness
Social Network-American Group
Christine worked as a Dining Services Coordinator at an airline in NV where she decided to go back to school to become a nurse. Christine received her license as a phlebotomist which is what she did at the hospital when she got into the accident that changed her life. Christine had thyroid cancer removed in two surgeries in 99. She was told that her cancer was back in 02 but it was a false alarm, thank God. A loving mother of 3 and wife, Christine is on the path of helping to make a difference for those living with Syringomyelia. She hope that God will provide a cure which will give her the ability to live pain free someday, and maybe even finish her nursing program so that she can be the nurse she had planned on being...
Natalie Terry (SM)
Volunteer
Florida USA
Facebook Syringomyelia Group
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Gitte Jespersen (SM)
Volunteer
Denmark
Syringomyelia Awareness Social Network
Denmark Group
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Sue Ajodhia, owner of Toronto based salon "Passion Hair Creations Corp" is known by her peers as an award winning hair designer, and artistic director of her own style book and website. Her success is a result of her versatality, her compassion for others, her natural flare for creativity, and many years of hard work and giving back to the community. Sue is a dedicated individual in helping others and helping to support in making a difference for others. www.passionhaircreations.com/
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