A special thank you goes out to all of our members for being a part of our awareness family; not just by supporting each other, but also in time it will help to increase awareness of Syringomyelia. We would like to acknowledge our members, keep the
blogs going, and ensure that our members maintain a very supportive
environment. In doing so we would like to show our appreciation, while
helping to increase awareness of our cause. By wearing the wristbands we had made to help fund the Carion Fenn Syringomyelia Foundation, it will help to keep the conversations going with regards to sm, increase awareness of SM while helping us in building & maintaining our support system.
Therefore, we will be selecting one member per month and will send them 2 free wristbands for their outstanding participation on the social network.
This honour will be given to a social network member who has been very supportive through the
participation of blogging, commenting, and making that extra effort in
helping others on our social network to become comfortable with our site and to encourage others to come forward and speak their mind as well. Is it our goal to be there for each other, get the foundation up and going and maintain the availability of our awareness site
for our members? Everyone has done a great job thus far and we are grateful
for our community. We do understand that some members are not able to
participate as much as other members and we don't want to discourage anyone. If you're not able to participate in the blogs etc, that's understandable. Just by being a member it's making a difference and we appreciate having you here with us. The more members the more information and support. There are other ways to help us as well, and if you wish to discuss your ideas with us we would be most appreciative.
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FEBRUARY 2010
Outstanding Social Network (www.smawareness.ca) Participant
Jody (SM)
Jody's about me: This is my first time joining something like this. My "struggle" with my health hit hard on Christmas Eve 2008, and I've been trying to figure out what the problem is eversince. My symptoms are multiple and continue to just get worse, the latest being intense pain and muscle spasticity. I have been significantly affected by this and just want to find some answers so that I can begin treatment and work towards getting better.
Jody posted 26 blogs and is one of our frequent bloggers. We are blessed to have her share her story/ journey with us and help in supporting each other.
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JANUARY 2010
Outstanding Social Network (www.smawareness.ca) Participant
Mr. Rick Ferris (SM)
Rick's "about me" from our Social Network: Spinal Cord injury in 1980 left me ambulatory but with other problems...first signs of SM were around 2006-2007...diagnosed in 2008...currently on disability from work as a result of my SM.
Ricks blogs includes: New guy in town", "Thanks to all", "Confused", "Confused...the sequel,lol", "Replies to the sequel", "Update to the sequel", "As promised...a weight loss solution", an afterthough about weight control", "Merry Christmas", "Chat room", "Appointment set", Appointment results".
Mr. Ferris is one of our regular bloggers who is very supportive to our members in sharing his experiences, asking questions, and responding to blogs posted by others. We are thankful for his support and happy to have him as our January 2010 Outstanding Social Network Participant.
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Syringomyelia Awareness Wristband
Help raise public awareness by purchasing and wearing your Syringomyelia wristband. A great conversation piece in telling others about SM, helping to build the foundation from the ground up and bringing awareness to this rare disabling neurological condition. This custom design RED with white accented writing and Canadian Maple Leaf silicone debossed wristband (202mm x 12mm x 2mm) by all of us living with Syringomyelia displays our cause and website address on the outside. This is a great way to show your support, while helping to increase awareness. Profit from the wristbands will be used to set up the Carion Fenn Syringomyelia Foundation and help to increase awareness of Syringomyelia. Your support is greatly appreciated in order for us to help make a difference.
If you or a love one was diagnosed with Syringomyelia or ACM join us at our Syringomyelia Awareness Social Network (www.smawareness.ca) where we have over 200 members who are living with Syringomyelia, ACM & love ones, a great support system where our members support each other around the world. Our members are from Canada, USA, United Kingdom, Denmark, New Zealand, India, Greece, Australia, and we are growing each day. We hope those living with Syringomyelia and related conditions find a home with us and help support each other. God bless you all and keep praying for us.
We would like to introduce our first outstanding participant:
DECEMBER 2009
Outstanding Social Network (www.smawareness.ca) Participant
Ms. Sheila DiFonzo
Diagnosed with Syringomyelia in July 2008, a nurse working in the community with a great family and a strong faith. Ms. DiFonzo has posted 7 blogs, a very frequent user of our social network in responding to others, and she plays a very supportive role with our members. Her blogs includes her struggles with Syringomyelia such as, Humbled, Feeling better, I want a vacation from pain, Met with Dr. Tator, What do you do and think about in the long nights?, Stem Cell Research, and sweats. She actively shares her experience and knowledge with our members. We are happy to have her as our December 2009 Outstanding Social Network Participant. Congratulations Ms. DiFonzo and Thank you!