Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".

"Together We Are Stronger" Syringomyelia & Chiari Malformation Awareness Campaign September 2014:

September 15 - 21, 2014 (Flag Raising)

City of Pickering:
One The Esplanade Pickering, Ontario L1V 6K7 Canada. Our Flag will be raised at the City of Pickering in honour of our Syringomyelia & Chiari Malformation month as proclaimed by Mayor David Ryan.

September 22, 2014 (Flag Raising)
City of Markham: 101 Town Centre Boulevard, Markham, Ontario, L3R 9W3. Our Flag will be raised at the City of Markham in honour of our Syringomyelia & Chiari Malformation Month as proclaimed by Mayor Frank Scarpitti. 

Syringomyelia & Chiari Malformation Month (September) has been Proclaimed by Town of Ajax Mayor Steve Parish, City of Pickering Mayor David Ryan, City of Markham Mayor Frank Scarpitti, City of Oshawa Mayor, and the Town of Fort Erie. We thank them for their support. 

Wheelchair Relay Challenge - Spinal Cord Injury Ontario

Join us at the 2014 Wheelchair Relay Challenge at Monarch Park Stadium in Toronto and help us raise funds for people with spinal cord injuries! Carion Fenn, of the Carion Fenn Syringomyelia and Chiari Network will be teaming up with Peter Athanasopoulos and the MV-1 Dream Team to increase awareness for SM, CM and all Spinal Cord Injuries! We are asking you to donate to our team if you can, any help is greatly appreciated. 

Read Peter Athanasopoulos' bio at:  and help us help all those with spinal cord injuries in Canada!!

2014 Wheelchair Relay Challenge
Sunday September 21, 2014
Monarch Park Stadium [Click to view map]

October 2014:
Snapd - Ajax/Pickering/ Whitby Article
"Together We Are Stronger"
Syringomyelia & Chiari Malformation
( Female & Male sizes available)
<click here> to order now. 

Syringomyelia & Chiari Malformation Awareness Wristbands
(Red, Blue, Purple & Light Purple) <click here> to order now.

Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.

Our Mandate
We are committed to providing support and promoting awareness for those affected by Syringomyelia, and Chiari Malformation.

Voice introduction done by Nuclear Lounge Inc. 


Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member)Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network)& Kellie (CFSCN Member)November 27, 2013. Debra talked to Carion, members of our social  network, & callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation.


Carion Fenn(Left) with Chris Alexander (right): Canada's Minister of Citizenship & Immigration & (MP) Member of  Parliament Ajax-Pickering at  the Chris Alexander MP's Fall  Fete 
September 22, 2013. 


Mayor Steve Parish (Left) Town of Ajax & Carion Fenn (Right) at the Volunteer Recognition Award Ceremony April 2014. 

    Town of Ajax - Volunteer      Recognition Award Ceremony

Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award.
Carion Received the Award for her work done for Carion Fenn Syringomyelia & Chiari Network.

The Carion Fenn Syringomyelia & Chiari Network is supported by The 
Patti Dawson Scholarship Award.