Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".
Our Meet & Greet II on November 30, 2013 at the Parkwood Village Condo hosted by Carion Fenn Syringomyelia & Chiari Network was a great success and we thank those who attended, and not only show up but support each other. Our next Meet & Greet will be scheduled soon. We thank Jeremy Webb for an excellent Job in Organizing this event and we look forward to having our next Meet & Greet to help support those living with Syringomyelia & Chiari Malformation.
Voice introduction done by Nuclear Lounge Inc.
Together We Are Stronger Campaign
Petition to the Government of Canada and Members of Parliament:
We petitioned The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Visit our eStore tab to view items available for purchase to support the work of our network: Birthday Card, Valentine's Day Card, Christmas Holiday Cards, and our Syringomyelia Wristband.
January 29, 2013, Marissa Theunissen SM said, Carion, when I was diagnosed I was scared, first time I heard about sm was that day, most everything that has helped me comes from this site, South Africa is A great country with good doctors who should read these blogs, because they could not help me like the members did. I feel stronger and empowered to live my life wisely but fully, this site is a life saver for me - daily! Thanx
Received November 22, 2012: What a wonderful website! I am so happy to have found you; your information is very plentiful and comforting. I have been having the most frustrating year and now I can join your awareness network. Together we are stronger brings inspiring hope, and I no longer feel alone. Thank you so much for all your time and efforts creating this website. I truly speak from my heart about this site, and how wonderful it is. It has changed how I look at this frustrating and under supported health problem that many people suffer with.
To read more about what our members say about us click here