Awareness starts with US! Change starts with us and only together will we make a stronger impact that's why we say, "Together We Are Stronger".
"Together we are stronger" Campaign
in conjunction with the Syringomyelia & Chiari Malformation Day, and our Wristband Day July 17! This campaign will highlight how we work together in support of each other to increase awareness. Over the next couple of years, we will be looking into doing more and different programs to increase awareness. July 17, 2013, we are asking our members, friends and family to wear the SM wristbands to show support for our cause and inspire people to tell others about our conditions. For a limited time only, we have lowered the cost of our wristbands, and offering a special to ensure you have a wristband you can wear and share! $20 for 5 wristbands. Next year we will implement our own Chiari Wristbands. We are also asking our members, their family and friends who support us to change their Facebook & our Social Network profile picture to show the picture of our "Together We Are Stronger" campaign poster or our wristbands. Help us increase awareness, because together we are stronger.
SM & CM Statistics (Social Network):
We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network; so that we are able to provide a more accurate count of people living with these conditions. Because not everyone with these conditions have the necessary tests to verify their diagnosis, we need to show the medical community that there are more of us out there than they know of and that they need to give these tests to those who suffer - everyone deserves a diagnosis - it isn't all in our heads! If we all join, we will know the statistics, somewhat more accurately, of how many people have these conditions. It will give people the opportunity to find someone in their area who shares these conditions, as well as giving you the ability to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.
We are proud to introduce our Welcoming Angels
Joann Saggese, Jill McLaren, Fleet, David McCauley, and Kenn Pond.
Our Welcoming Angels will be a new members first experience with members on our site. Hopefully, this will help ease the new members and especially the newly diagnosed into the group, introducing themselves and the things available on the site. Our welcoming angels are also first to wish our members a happy birthday. Join us for support and see our Angels in actions!
We understand your pain, symptoms, struggles and the frustration you go through daily, and we struggle too! But we can make things easier for each other when we support each other. Some of us experience severe pain that is treated with medication but the pain doesn't go away, but having someone to communicate with and who understands what you are experiencing is so imperative. We are here to help you along the way offering our 24 hours online social network and our commitment to increase awareness. Most of us when first diagnosed had no information and no one to communicate with, we are here to bridge that gap and we want to ensure that others don't go through what we did by trying to make those things easier for patients. Our team struggles each day to push through pain to offer their support and help you find what you need to make dealing with these conditions easier, by educating our members and providing the best information possible we are providing the help and increasing awareness. If we don't do this, no one will. We are all in this together and only together will we make a difference.
Voice introduction done by Nuclear Lounge Inc.
Visit our eStore tab to view other items available for purchase: Birthday Card, Valentine's Day Card, Christmas Holiday Cards, and our Syringomyelia Wristband.
Our Mission: Our mission is to promote, educate and support by providing a virtual community for those living with Syringomyelia, Chiari, loved ones, and the medical professionals that treat them. A place to share, learn and support those living with Syringomyelia (SM), and Chiari Malformation (CM).
Mandate: We are committed to providing support and promoting
awareness for those living with Syringomyelia, and Chiari Malformation.
How you can help:
In order to assist those living with SM or CM our mission and mandate must be met. We genuinely ask for your support in helping us fulfill this much needed void. Help show the people who are living with these disorders that they are not alone by purchasing our Wristbands, Christmas holiday cards , be a yearly website subscriber for $5 per year or you can just sign our guest book to show your support. Your support help us help others while helping to increase awareness of these rear disabling neurological conditions affecting others around the world. Spinal Cord Injury such as Syringomyelia can happen to you or your loved ones. Profits from our products are used to fund our Projects. Thank you for your support and keep us in your prayers.
January 29, 2013, Marissa Theunissen SM said, Carion, when I was diagnosed I was scared, first time I heard about sm was that day, most everything that has helped me comes from this site, South Africa is A great country with good doctors who should read these blogs, because they could not help me like the members did. I feel stronger and empowered to live my life wisely but fully, this site is a life saver for me - daily! Thanx
January 28, 2013 David Allen McCauley sm said, I'm new to the site and new to blogging in general. It was a welcome relief to find a site dedicated to SM. My first blog was widely viewed and the comments were right on and welcome. A dark part of this condition is having no one to talk to that really understands your pain. Clearly, each of those that commented on my blog understands the daily battle. I'm looking forward to fully participating in the website's opportunities. My thanks to those that saw the need and responded!!!
Received November 22, 2012: What a wonderful website! I am so happy to have found you; your information is very plentiful and comforting. I have been having the most frustrating year and now I can join your awareness network. Together we are stronger brings inspiring hope, and I no longer feel alone. Thank you so much for all your time and efforts creating this website. I truly speak from my heart about this site, and how wonderful it is. It has changed how I look at this frustrating and under supported health problem that many people suffer with. Nan Carter.
To read more about what our members say about us click here