Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".

Upcoming Events
April 8, 2014: Carion Fenn will receive the Accessibility 2013 Volunteer Recognition Award from the Town of Ajax. 

Together We Are Stronger Campaign

Introducing our "Together we are Stronger" Campaign in conjunction with the Syringomyelia & Chiari Malformation Day and month, and our Wristband Day July 17!  This campaign will highlight how we work together in support of each other to increase awareness because Together we are Stronger!

National Accessibility Awareness Week
June 1 - 7, 2014

Syringomyelia & Chiari Malformation Day
Meet & Greet 
July 17, 2014 7pm - 9pm

Carion Fenn Syringomyelia & Chiari Network

Parkwood Village Condominium
Recreation Center

1669 Nash Road # 1651
Courtice, ON Canada L1E 1S8
Our organizer: Jeremy Webb

Please join us in celebration of our Syringomyelia & Chiari Malformation Day with those living with Syringomyelia & Chiari Malformation. This is an opportunity to not only celebrate our special day but to meet others with Syringomyelia & Chiari Malformation. Please <click here> to confirm your attendance. 

Syringomyelia & Chiari Malformation Day Facebook Online Event July 17, 2014: 

Join us on July 17, 2014 in supporting those affected by Syringomyelia & Chiari Malformation around the world and raising awareness by Pledging & changing your Facebook picture to our poster "Together We Are Stronger" campaign poster on July 17, 2014. Please <click here> to confirm your participation. 
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.

Our MandateWe are committed to providing support and promoting awareness for those living with Syringomyelia, and
Chiari Malformation.

Syringomyelia & Chiari Wristband

Become a Syringomyelia & Chiari Network Subscriber  or Donate to help support our causes: Syringomyelia & Chiari Malformation

Subscription (optional) $5/year. 
If you would like to help support the Carion Fenn Syringomyelia & Chiari Network’s Mission in providing a place to share, learn, and support each other and you believe in the path we are taking, the awareness we are increasing, and our passion to provide support for those living with Syringomyelia & Chiari Malformation around the world then we need your help financially. Please subscribe to our network or donate to help us help our causes. This is not required to be a member of our social network, but rather help us to keep our support systems free. Thanks for your continued support. Money from your subscription/ donation will be used to pay for our support systems like our websites, events, and the programs we get involved with. Our Syringomyelia & Chiari Malformation Social Network has been online since 2008 and we have accomplished a lot since our establishment such as having our conditions recognized by the Town of Ajax for the first time in Canadian History. We are currently working on getting our causes recognized federally by the Canadian Government/ Members of Parliament. We provide meet & Greets free of charge. We want to do more. There are costs involved in having a website, social network, holding events, printing information brochures and the like. The Carion Fenn Syringomyelia & Chiari Network is operated and managed by a group of passionate volunteers who need your help financially to keep our momentum going. Your Subscription is greatly appreciated. We are not a Charity and cannot give our tax receipts. Thank you for your generous support. 
Progress Report
                      Mayor Rob Ford
               City of Toronto ON Canada

                       September 30, 2013
    Syringomyelia & Chiari Malformation Day

                     Mayor Rob Burton 
                  Town of Oakville, ON Canada
                               September 2013
                      Chiari Malformation Month

                     Mayor John Henry
               City of Oshawa, ON Canada
             July 17, 2014 & September 2014
     Syringomyelia & Chiari Malformation Day & Month

                         Charity Village
                  Awareness Day Calendar
          Syringomyelia & Chiari Malformation
          July 17 (Day) & September (Month) 

Voice introduction done by Nuclear Lounge Inc. 


Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member)Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network)& Kellie (CFSCN Member)November 27, 2013. 

Debra Talked to Carion, members of our social  network, & Callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation. The response was that the show was very informative, and a great resource to help educate others. Below listed are two segments from the show, click on the links below to view the segments. 

A full copy of the show can be ordered by clicking the below link: 
Rogers TV Dub Request (Click here)

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

Currently there is no cure for Syringomyelia or Chiari, surgery is an option for some but not everyone will be a candidate for surgery. 
Until then we work in support of each other because "Together we are stronger". 

 SM & CM Statistics (Social Network):

We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.


January 29, 2013, Marissa Theunissen SM said, Carion, when I was diagnosed I was scared, first time I heard about sm was that day, most everything that has helped me comes from this site, South Africa is A great country with good doctors who should read these blogs, because they could not help me like the members did. I feel stronger and empowered to live my life wisely but fully, this site is a life saver for me - daily! Thanx

Received November 22, 2012: What a wonderful website! I am so happy to have found you; your information is very plentiful and comforting. I have been having the most frustrating year and now I can join your awareness network. Together we are stronger brings inspiring hope, and I no longer feel alone. Thank you so much for all your time and efforts creating this website. I truly speak from my heart about this site, and how wonderful it is. It has changed how I look at this frustrating and under supported health problem that many people suffer with.
Nan Carter

To read more about what our members say about us click here

Our Syringomyelia (SM) & Chiari Malformation (CM) Network is a place to share, learn and support those with Syringomyelia (SM), and Chiari Malformation (CM) worldwide.