Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".
Meet & Greet III
April 5, 2014 at 1PM
Location: To be Determined but will be within an hour of Durham ON Canada.
Hosted by Carion Fenn Syringomyelia & Chiari Network
This is an opportunity to help support each other while increasing awareness of our community. So if you have Syringomyelia or Chiari Malformation or you are a loved one please join us because we need to support each other. Click here to RSVP or you can email us at firstname.lastname@example.org.
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.
Our Mandate: We are committed to providing support and promoting awareness for those living with Syringomyelia, and Chiari Malformation.
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History.
We are pleased to announce that the Mayor Steve Parish of the Town of Ajax in Ontario Canada, presented to Carion Fenn, creator and founder of the Syringomyelia & Chiari Network, a certificate of proclamation recognizing July 17 and the month of September as Syringomyelia and Chiari Malformation awareness dates live on Rogers TV.
Introducing our "Together we are Stronger" Campaign in conjunction with the Syringomyelia & Chiari Malformation Day and month, and our Wristband Day July 17! This campaign will highlight how we work together in support of each other to increase awareness because Together we are Stronger!
Facebook Event:Join us on July 17 in supporting Syringomyelia & Chiari Malformation and raising awareness by changing your Facebook page to our poster. For more details <Click here>.
Voice introduction done by Nuclear Lounge Inc.
Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member). November 27, 2013.
Debra Talked to Carion, members of our social network, & Callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation. The response was that the show was very informative, and a great resource to help educate others. Below listed are two segments from the show, click on the links below to view the segments.
Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013.
A full copy of the show can be ordered by clicking the below link:
Currently there is no cure for Syringomyelia or Chiari, surgery is an option for some but not everyone will be a candidate for surgery.
Until then we work in support of each other because "Together
we are stronger".
SM & CM Statistics (Social Network):
We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network. This will enable us to provide a more accurate count of people living with these conditions. In addition, it will give people the opportunity to find someone in their area who shares these conditions. The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.
January 29, 2013, Marissa Theunissen SM said, Carion, when I was diagnosed I was scared, first time I heard about sm was that day, most everything that has helped me comes from this site, South Africa is A great country with good doctors who should read these blogs, because they could not help me like the members did. I feel stronger and empowered to live my life wisely but fully, this site is a life saver for me - daily! Thanx
Received November 22, 2012: What a wonderful website! I am so happy to have found you; your information is very plentiful and comforting. I have been having the most frustrating year and now I can join your awareness network. Together we are stronger brings inspiring hope, and I no longer feel alone. Thank you so much for all your time and efforts creating this website. I truly speak from my heart about this site, and how wonderful it is. It has changed how I look at this frustrating and under supported health problem that many people suffer with. Nan Carter.
To read more about what our members say about us click here
Our Syringomyelia (SM) & Chiari Malformation (CM) Network is a place to share, learn and support those with Syringomyelia (SM), and Chiari Malformation (CM) worldwide.
Copyright 2008-2013. Carion Fenn Syringomyelia & Chiari Network. All rights reserved.
Disclaimer: Our websites are intended for information purposes only and may or may not apply to you. We are not doctors and we do not give medical advice. We do not endorse any doctors, products or procedures. Always consult a qualified medical professional for medical care. Please refer to our terms of service before using our sites. Terms of Service