For so long I've felt alone in what was going on with my body. About 6mo ago I found your fb page and this website and I finally dont feel so alone. I may not like what is going on with my body but I know if I am upset, scared, or just need to know something I finally have people I can go to who know what is going on finally. I am new to writing my feelings and being open to what is going on. With your page and site I've even found other Veterans and military with cm and sm which I thought I was alone in that community with this. Thank you SO MUCH for pretty much saving my life
Brittany Butts said:April 19, 2013 7:24 pm PST
I was diagnosed with C.M. and im so thankful they finally found out what was going on. For 3 years now I have had many issues that many doctors could not explain. They simply told me to deal with it. So that's what I did. After having my 4th kidney stone surgery, I suddenly started having bladder issues. My doctor put me on ever medication possible and nothing helped. They even did a scope and again found nothing. At this appt. I told him that I was having this really weird pain in my back that was very painful. He then said that we should do an MRI to just to make sure everything was ok. Well it wasn't. I found out that was really going on. So after getting my results of my MRI I came home and researched what was going on. Come to find out EVERYTHING finally for once made since. I could relate to ever issue that was explained on what was going on! I have another MRI next wed then from there we will decide what we should do from there. Im 22 and a mother of 4 children, one only being 9 months old but I have the best husband in the world and I know everything will be ok!
Ann Marie said:March 16, 2013 11:34 am PST
I can't imagine what you guys are going through, and I want to send my love and support to all. Keep strong, and know that god is always watching over his children.
terry russell said:July 1, 2010 8:49 am PST
oh my gosh. you all sound like my brother. i am a new person to this site. he's been through so much. leg pain, back problems,neck problems, no control. our father had so many of the same symptoms. he was always in pain and had the same kind of symptoms. so do i but know one listens. your right. they say it's all in your head. please send any kind of advise. thank you.
terry russell said:July 1, 2010 8:37 am PST
my brother has been diagonsed with this disease and is having a horrible time. no insurance and can not get any help. no where to go. and his family doctor says he needs surgery. and nero doc. but of course he can not afford any of it. christopher reeves foundation did respond but no where to go. signed up for disability but was refused. anyone with help or guideness please help me help him. he's having horrible headaches, tired,pain,weakness etc...........anyone who can help sure will be appreciated. for all of you with this disease. GOD BLESS
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