Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.
Our Mandate: We are committed to providing support and promoting awareness for those affected by Syringomyelia, and Chiari Malformation.
Syringomyelia Presentation Town of Ajax - Town Hall
Accessibility Advisory Committee
River Plate Room
Syringomyelia & Chiari Malformation Month
Support Group Meeting - Date & Time (coming soon)
Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member). November 27, 2013. Debra talked to Carion, members of our social network, & callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation.
"Together We Are Stronger" Syringomyelia & Chiari Malformation T-Shirt ( Female & Male sizes available) <click here> to order now.
Syringomyelia & Chiari Malformation Awareness Wristbands
(Red, Blue, Purple & Light Purple) <click here> to order now.
Carion Fenn(Left) with Chris Alexander (right): Canada's Minister of Citizenship & Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete
September 22, 2013.
Mayor Steve Parish (Left) Town of Ajax & Carion Fenn (Right) at the Volunteer Recognition Award Ceremony April 2014.
Town of Ajax - Volunteer Recognition Award Ceremony
Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award. Carion Received the Award for her work done for Carion Fenn Syringomyelia & Chiari Network.
Voice introduction done by Nuclear Lounge Inc.
Copyright 2008-2013. Carion Fenn Syringomyelia & Chiari Network. All rights reserved.
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