Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".

Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.

Our MandateWe are committed to providing support and promoting awareness for those affected by Syringomyelia, and
Chiari Malformation.

Upcoming Events:

September 2014

Syringomyelia Presentation
Town of Ajax - Town Hall

Accessibility Advisory Committee
River Plate Room

Syringomyelia & Chiari Malformation Month

Support Group Meeting - Date & Time (coming soon)


Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member)Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network)& Kellie (CFSCN Member)November 27, 2013. Debra talked to Carion, members of our social  network, & callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation.

"Together We Are Stronger"
Syringomyelia & Chiari Malformation
( Female & Male sizes available)
<click here> to order now. 

Syringomyelia & Chiari Malformation Awareness Wristbands
(Red, Blue, Purple & Light Purple) <click here> to order now.


Carion Fenn(Left) with Chris Alexander (right): Canada's Minister of Citizenship & Immigration & (MP) Member of  Parliament Ajax-Pickering at  the Chris Alexander MP's Fall  Fete 
September 22, 2013. 


Mayor Steve Parish (Left) Town of Ajax & Carion Fenn (Right) at the Volunteer Recognition Award Ceremony April 2014. 

    Town of Ajax - Volunteer      Recognition Award Ceremony

Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award.
Carion Received the Award for her work done for Carion Fenn Syringomyelia & Chiari Network.

Voice introduction done by Nuclear Lounge Inc.