Change and Awareness starts with US! We can make a stronger impact when we work together, that's why we say, "Together We Are Stronger".

Syringomyelia & Chiari Malformation Month
(September 2014) Upcoming Events:

September 8, 2014 10:15 AM
Flag Raising
Town of Ajax - Town Hall
55 Harwood Avenue South
Ajax, ON L1S 2H9

Our Syringomyelia & Chiari Malformation Flag will be raise in honour of Ms. Patti Dawson at Town of Ajax - Town Hall for 7 days to increase public awareness of Syringomyelia & Chiari Malformation. <click here> to RSVP or email 

September 10, 2014 6PM
Syringomyelia Presentation
by Carion Fenn
Town of Ajax - Town Hall

Accessibility Advisory Committee
River Plate Room

September 13, 2014 1pm-4pm
Support Group Meeting

Board Room
55 Gordon Street
Whitby, Ontario L1N 0J2
Abilities Centre

Our Syringomyelia & Chiari Malformation support Group to support those affected by SM/CM & Educate the public. <click here> to RSVP or email us at 

September 15 - 21, 2014
Flag Raising
Pickering City Hall is located at
One The Esplanade
Pickering, Ontario  L1V 6K7
City of Pickering will have our flag up at City Hall in honour of our Syringomyelia & Chiari Malformation month as per Mayor David Ryan Proclamation. 

Wheelchair Relay Challenge - Spinal Cord Injury Ontario

Join us at the 2014 Wheelchair Relay Challenge at Monarch Park Stadium in Toronto and help us raise funds for people with spinal cord injuries! Carion Fenn, of the Carion Fenn Syringomyelia and Chiari Network will be teaming up with Peter Athanasopoulos and the MV-1 Dream Team to increase awareness for SM, CM and all Spinal Cord Injuries! We are asking you to donate to our team if you can, any help is greatly appreciated. If you make a donation you will get a tax receipt right after your card is processed. When you donate, we are asking you to put Syringomyelia or Chiari Malformation beside your name in the Recognized Name Box for the donation form. This is one way our groups are coming together over the next couple of years, because as we always say: Together We Are Stronger! Read Peter Athanasopoulos' bio at:  and help us help all those with spinal cord injuries in Canada!!

Our founder and 2014 recipient of the Patti Dawson Scholarship Award, Carion Fenn, will be at the 2014 Wheelchair Relay Challenge at Monarch Park Stadium in Toronto Sunday September 21, 2014 representing all of you. We need you support, as we always say, together we are stronger, so lets work together.

2014 Wheelchair Relay Challenge
Sunday September 21, 2014
Monarch Park Stadium [Click to view map]

NEW:Spinal Cord Injury (Ontario) & University Health Network selected Carion Fenn for the Patti Dawson Scholarship Award. The Carion Fenn Syringomyelia & Chiari Network is now supported by The Patti Dawson Scholarship Award. 

"Together We Are Stronger"
Syringomyelia & Chiari Malformation
( Female & Male sizes available)
<click here> to order now. 

Syringomyelia & Chiari Malformation Awareness Wristbands
(Red, Blue, Purple & Light Purple) <click here> to order now.


Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member)Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network)& Kellie (CFSCN Member)November 27, 2013. Debra talked to Carion, members of our social  network, & callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation.

Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.

Our MandateWe are committed to providing support and promoting awareness for those affected by Syringomyelia, and
Chiari Malformation.

Carion Fenn(Left) with Chris Alexander (right): Canada's Minister of Citizenship & Immigration & (MP) Member of  Parliament Ajax-Pickering at  the Chris Alexander MP's Fall  Fete 
September 22, 2013. 


Mayor Steve Parish (Left) Town of Ajax & Carion Fenn (Right) at the Volunteer Recognition Award Ceremony April 2014. 

    Town of Ajax - Volunteer      Recognition Award Ceremony

Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award.
Carion Received the Award for her work done for Carion Fenn Syringomyelia & Chiari Network.

Voice introduction done by Nuclear Lounge Inc.