Introducing our "Together we are Stronger" Campaign in conjunction with the Syringomyelia & Chiari Malformation Day and month, and our Wristband Day July 17! This campaign will highlight how we work together in support of each other to increase awareness because Together we are Stronger!
National Accessibility Awareness Week
June 1 - 7, 2014
Please join us in celebration of our Syringomyelia & Chiari Malformation Day with those living with Syringomyelia & Chiari Malformation. This is an opportunity to not only celebrate our special day but to meet others with Syringomyelia & Chiari Malformation. Please <click here> to confirm your attendance.
Join us on July 17, 2014 in supporting those affected by Syringomyelia & Chiari Malformation around the world and raising awareness by Pledging & changing your Facebook picture to our poster "Together We Are Stronger" campaign poster on July 17, 2014. Please <click here> to confirm your participation.
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.
Our Mandate: We are committed to providing support and promoting awareness for those living with Syringomyelia, and Chiari Malformation.
Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder, Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member). November 27, 2013.
Debra Talked to Carion, members of our social network, & Callers including Jamie McDonald about the issues faced with living with Syringomyelia & Chiari Malformation. The response was that the show was very informative, and a great resource to help educate others. Below listed are two segments from the show, click on the links below to view the segments.
Currently there is no cure for Syringomyelia or Chiari, surgery is an option for some but not everyone will be a candidate for surgery.
Until then we work in support of each other because "Together
we are stronger".
SM & CM Statistics (Social Network):
We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network. This will enable us to provide a more accurate count of people living with these conditions. In addition, it will give people the opportunity to find someone in their area who shares these conditions. The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.
January 29, 2013, Marissa Theunissen SM said, Carion, when I was diagnosed I was scared, first time I heard about sm was that day, most everything that has helped me comes from this site, South Africa is A great country with good doctors who should read these blogs, because they could not help me like the members did. I feel stronger and empowered to live my life wisely but fully, this site is a life saver for me - daily! Thanx
Received November 22, 2012: What a wonderful website! I am so happy to have found you; your information is very plentiful and comforting. I have been having the most frustrating year and now I can join your awareness network. Together we are stronger brings inspiring hope, and I no longer feel alone. Thank you so much for all your time and efforts creating this website. I truly speak from my heart about this site, and how wonderful it is. It has changed how I look at this frustrating and under supported health problem that many people suffer with. Nan Carter.
To read more about what our members say about us click here
Our Syringomyelia (SM) & Chiari Malformation (CM) Network is a place to share, learn and support those with Syringomyelia (SM), and Chiari Malformation (CM) worldwide.
Copyright 2008-2013. Carion Fenn Syringomyelia & Chiari Network. All rights reserved.
Disclaimer: Our websites are intended for information purposes only and may or may not apply to you. We are not doctors and we do not give medical advice. We do not endorse any doctors, products or procedures. Always consult a qualified medical professional for medical care. Please refer to our terms of service before using our sites. Terms of Service