Syringomyelia (Sear-IN-go-my-EEL-ya) (Canadian) - TOGETHER WE ARE STRONGER
Syringomyelia Awareness Wristband
Canadian
Help raise Canadian public awareness by purchasing and wearing your Syringomyelia wristband. A great conversation piece in telling others about SM, helping to build the foundation from the ground up and bringing awareness to this rare disabling neurological condition. This custom design RED with white accented writing and Canadian Maple Leaf silicone debossed wristband (202mm x 12mm x 2mm) by all of us living with Syringomyelia displays our cause and website address on the outside. This is a great way to show your support, while helping to increase awareness. Profit from the wristbands will be used to set up the Carion Fenn Syringomyelia Foundation and help to increase Canadian awareness of Syringomyelia. Your support is greatly appreciated in order for us to help make a difference.
NEW: ***************************************************************** I acquired Syringomyelia, also known as SM, along with other injuries from a car accident. Syringomyelia is a Syrinx, also known as a tubular filled cyst that forms inside of the spinal cord. There are others who are also living with this rare, progressive, incurable, disabling neurological condition and due to the lack of knowledge of this rare condition I feel we must do something to help others. Much research, awareness to the public and in the medical community as well as help for those living with SM is needed to reduce the suffering. The goals of Carion Fenn Syringomyelia Foundation are to: Raise Canadian public awareness in hopes of finding a cure someday.
Visit our 'SM Wristbands' page to read about our new "Outstanding Social Network Participant each month" and don't forget to purchase our wristbands and help support our journey in helping others as well as increasing awareness of SM.
Thank you for your support in raising the awareness of Syringomyelia, and supporting those living with SM.
When I was first diagnosed, the word Syrinx was unknown to me, and I knew no one living with this disorder or condition. As I become more aware of what a Syrinx is through my own internet research, I came across many others who share similar symptoms, and of course, pain. It was a difficult time, not only for me, but also for others suffering from SM that were unable to get informed medical practitioners. It has been my experience that most people did not know anyone who shares this rare disorder when diagnosed. Personally, at times it felt as if I was screaming for help but no one could hear my voice. So, I started an online group for Syringomyelia, and once I heard the voices of others crying for help I became more and more inspired to start this foundation.
Currently there's no cure for Syringomyelia.
We ask for your support in helping us fulfill our goals and mission in helping those living with SM. This can happen to you or your loved ones. Help show the people who are living with this disorder that they are not alone by donating or signing our guest book. Thank you for your support and keep us in your prayers.
Carion Fenn
Our mission is to provide a place for those living with SM to interact, share stories, and find resources. Promote awareness and raise funds to support SM in hopes of having a cure someday.
Assist in providing support for those recently diagnosed, and those living with SM.
Raise funds in support of SM.
Educate the medical community.
The Carion Fenn Syringomyelia Foundation was founded and is operated by friends, and those living with Syringomyelia. As a group we work together in support of each other in hopes of educating not only the public but the medical practitioners as well. With all the medical break-throughs these days we are hoping to have a cure someday, and living a relatively pain free lifestyle.