Syringomyelia & Chiari Malformation
T-Shirt 
<click here> to order now.
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.
Upcoming Events:
      Next Support Group Meeting: May 30,  2015 4pm-6pm est
Learning to accept the new and your limitations!
<Click here> for details.
A place to share, learn & Support each other!

June 8, 2015 6pm:
A Voice For All
- Rogers TV
Host: Jahmeelah Gamble. Television Interview


July 17, 2015 12am-11:59am
Syringomyelia & Chiari Malformation Day Facebook Event 


September 1, 2015: 11AM: Town of Ajax (Flag Raising Event)

Syringomyelia & Chiari Malformation Flag Raising with Mayor Parish. Our Flag will be up at Town Hall for 1 weeks. 

AODA 10th Anniversary Celebration: Carion Fenn with the Honourable David Onley, Ontario 28th lieutenant Governor and Ontario's first Lieutenant Governor with a physical disability. 

Carion Fenn with Chris Alexander: Canada's Minister of Citizenship & Immigration, Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete 2013
Abilities Awards: Advocacy Award 2014 winner Carion Fenn with Councillor Jennifer O'Connor (Pickering) & Chris Leahy (Whitby), and host Jahmeelah Gamble.
Our Foundation Carion Fenn is a four time award winning advocate: Spinal Cord Injury & University Health Network Patti Dawson Award, Town of Ajax Civic Award-Adult & Accessibility Award and Abilities Award: Advocacy Award. 

Carion Fenn receiving the Town of Ajax Civic Award (Adult) from Mayor Steve Parish. 
Town of Ajax raised our first flag, followed by the City of Pickering & Markham. Thank you. Click on the Flag Raising Tab for more details. 


Funded by the award of the Spinal Cord Injury & University Health Network Patti Dawson Award, personal contributions, and sales from our awareness products.

Help support our causes by purchasing and wearing our syringomyelia & Chiari Malformation Awareness Wristbands: Blue, Purple, and Red. <click here> to order now. 


Voice introduction done by Nuclear Lounge Inc.