Syringomyelia & Chiari Malformation
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Syringomyelia & Chiari Malformation Awareness Wristbands
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Our Mandate:
We are committed to providing support and promoting awareness for those affected by Syringomyelia, and Chiari Malformation.

Abilities Awards: Advocacy Award 2014 winner Carion Fenn
Mayor Steve Parish & Carion
Shaun Collier, Regional Councillor presented Carion Fenn with the Accessibility Award for her work done for Carion Fenn Syringomyelia & Chiari Network. 
Carion Fenn (Left) with Chris Alexander (right)Canada's Minister of Citizenship & Immigration & (MP) Member of  Parliament Ajax-Pickering at  the Chris Alexander MP's Fall  Fete 2013.
Our Mission: To promote, educate, share, learn and support those living with Syringomyelia (SM) and Chiari Malformation (CM), their loved ones, and their treating medical team while educating the public in hope of discovering a cure.
Upcoming Events:

Next Support Group Meeting: March 28, 2015 4pm-6pm est

Doctor's Appointments: Getting ready from your first apt to your yearly check-up.  <Click here> for details.
We offer Online & Local Support Group Meetings at once!

April 14, 2015 6:30PM:
Volunteer Recognition Award
Town of Ajax. Our Foundation Carion Fenn will receive the Ajax Civic Award from Mayor Parish, Town of Ajax

July 17, 2015 12am-11:59am
Syringomyelia & Chiari Malformation Day Facebook Event

May 11, 2015 7pm Town of Ajax Council Meeting
Town of Ajax: Council Chambers 
(Syringomyelia & Chiari Malformation Proclamation Presentation)
 Mayor Steve Parish will present the Proclamation to Carion Fenn 

September 1, 2015: 11AM: Town of Ajax (Flag Raising Event)
Syringomyelia & Chiari Malformation Flag Raising with Mayor Parish. Our Flag will be up at Town Hall for 1 weeks. 

We thank Town of Ajax, City of Pickering, and City of Markham for Raising our flag.

Voice introduction done by Nuclear Lounge Inc. 

Funded by the award of the Spinal Cord Injury & University Health Network Patti Dawson Award, personal contributions, and sales from our awareness products.